Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts

Friday, August 28, 2009

4 Treatments for Fibromyalgia - by Dr Oz



Dr. Oz will see you now! In his first O column, he analyzes the different treatments for fibromyalgia.

Defining Fibromyalgia: Though classified as a disorder of the musculoskeletal system, the condition is now seen as a central nervous system problem. Symptoms include increased sensitivity to pain, achy and stiff joints, fatigue, and specific tender points on the back, chest, arms, and legs. Migraines, sleep disorders, and irritable bowel syndrome are also common complaints. Up to 3 percent of the population may suffer from fibromyalgia, but with no clear cause, the condition is difficult to diagnose.

Western Medicine Approach: A formal diagnosis for fibromyalgia didn't exist until 1990, but now there are three FDA-approved meds to combat the pain. Still, says Nancy Klimas, MD, director of the Allergy and Immunology Clinic at the University of Miami, "there is much more to treatment than a pill." Strategies are needed to improve sleep, stretch and restore symmetry to muscles that have been shortened by spasm, and raise overall conditioning through exercise.

Energy-Based Approach: Practitioners believe the root of fibromyalgia is a disturbance in nerves that blocks energy. The disturbance, says Devi S. Nambudripad, MD, PhD, and a licensed acupuncturist, is caused by sensitivities to substances ranging from pollen to vaccines to chemical agents in fabrics. Anxiety and depression may also play a part. Practitioners use acupuncture to release energy and allergy testing to identify problem substances.

Psychological Approach: "The pain of fibromyalgia is not caused by depression," says Leonard Jason, PhD, professor of psychology at DePaul University, "but depression can deepen a patient's experience of pain." Mental health professionals may play a complementary role in treatment, but it's a vital one. Cognitive behavioral therapy can relieve depression and help patients identify sources of stress that magnify their symptoms.

Nutrition-Based Approach: Fibromyalgia is a systemwide breakdown, says Jacob Teitelbaum, MD, medical director of the nationwide Fibromyalgia & Fatigue Centers. After suffering from the disease in the 1970s, he developed his own protocol; in studies, patients improved by as much as 91 percent. He recommends supplements to help sufferers sleep, balance hormones, boost immunity, and improve nutrition. He also prescribes regular exercise. (Try Dr. Oz's 20-minute workout plan)

My Recommendation: Because Western medicine was slow to accept fibromyalgia, it is behind in its work; this is an area where patients will want to take a serious look at alternative approaches. Energy-based medicine could offer some important advances in treatment over the next decade, but since it has yet to be tested by independent research, I think it's premature to base your therapy solely on this approach. I'm more impressed by Teitelbaum's supplement regimen, and not only because he has tested his theories: I've put patients on this program with very good results. I would add counseling, as it should always be a part of fibromyalgia treatment. If after a couple of months you don't see improvement, talk to your doctor about drug therapy.

By Mehmet Oz, MD

from O Magazine
http://www.oprah.com/article/omagazine/200909-omag-dr-oz-fibromyalgia






For my information about Fibromyalgia - National Fibromyalgia Association

Saturday, June 21, 2008

Compassion...




Just a few days ago someone asked me how I was doing, I answered my standard answer "That I was hanging in”. She quickly came back “you always say that” I expressed I had a lot I was dealing with, her reply “you are no different than the rest of us”.

And yet we are not like anyone else. Yes, we all have our trials and struggles, that is what this life is all about. But I also fight everyday against my own body and mind. The pain and fatigue some days makes it almost impossible to do any thing. It hurt, such a comment without some compassion or any understanding.

I hope and pray that we can find the charity we need to love each other, pray for each other and help each other.


8 And it came to pass that he said unto them: Behold, here are the waters of Mormon (for thus were they called) and now, as ye are desirous to come into the fold of God, and to be called his people, and are willing to bear one another’s burdens, that they may be light;
9 Yea, and are willing to mourn with those that mourn; yea, and comfort those that stand in need of comfort, and to stand as witnesses of God at all times and in all things, and in all places that ye may be in, even until death, that ye may be redeemed of God, and be numbered with those of the first resurrection, that ye may have eternal life -
10 Now I say unto you, if this be the desire of your hearts, what have you against being baptized in the name of the Lord, as a witness before him that ye have entered into a covenant with him, that ye will serve him and keep his commandments, that he may pour out his Spirit more abundantly upon you?

21 And he commanded them that there should be no contention one with another, but that they should look forward with one eye, having one faith and one baptism, having their hearts knit together in unity and in love one towards another

Wednesday, May 14, 2008

#1 Fibromyalgia - In my Youth

I am sharing with everyone my battle with Fibromyalgia. I’m asked all the time “How do you do it with such a large family” then many found out that I am sick to boot and they wonder even more.

As I looked back on life, of course hindsight is 20/20. I also want to explain that this will in no way be a full explanation of events in my life, but an overview to bring some understanding and awareness.
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I had some very significant events that happened to me at a young age.




Christi Leonard - 2nd Grade - 1972

When I was 7 and in second grade 
we lived in Capitola, California, near Santa Cruz while my Father had a job there. We lived on the second floor of an apartment building, they were building another apartment complex right across the street. On the property was an old abandoned house; it was a huge house that they would be tearing down to make room for the project. I remember we will able to go through it and collect any items we wanted. It was getting dark, we were walking through it with candles, it was so scary, and to me it was like I was in a horror film. After collecting fur coats, old vintage clothing and other old items. We returned to our apartment, packing the items into boxes to take them back to Clovis where our house was.


In the middle of the night I was woken up by my mother’s voice yelling at my Dad, I could hear her over and over again calling his name. In a few minutes I felt my mother’s hand pulling on me, as I tried to get up I quickly fell to my knees. I could not breath our apartment was on fire! As I crawled with mother into by brother’s room we got him up and crawled to my parents room. 


There lying on the bed was my Father, I wasn’t sure if he was alive or not. My mother shut the door behind us, and opened the window and starting yelling for help. I was in just a small set of baby doll pajamas, my mother wrap me in one of her robes. I started yelling where in Nicodemus? That was my kitten, I could hear him but I could not find him. Someone found him and gave him to me; I put him into one of the pockets of the robe I was wearing. My mother had my brother and I jump out the window; on the ground was a black gentleman who caught us. 

We ran to our family car that was park there at the curb. They  There came so many fire engines, and police cars. We were crying so hard, we still did not see any sign of our Dad, we could see my mother at the window with smoke coming out of the window around her, she too jumped out of the second story window.. They were able to put the fire out, then shortly I saw my father, he was okay, he had been overcome by the smoke. 

So there we are in the middle of the night with nowhere to go. We went to a place like a Denny’s (Shoney's) that was open all night. We ordered some food and there we sat, covered in soot, with nothing but the clothes on our back and in shock.What was the cause of the fire? It was one of the boxes of items that we collected. It caught on fire from a wall heater that was next to the box in the living room. 



This is a picture of my mother the following day, in our kitchen. August 1972

~
If that wasn’t traumatic enough in the same time period our house in Clovis had been robbed. So after cleaning and recovering what we could from the fire we traveled back to our home in Clovis.

When we got there, we opened the door of the house it was a mess, things were dump all over place. The police had dusted the house for fingerprints, so there we dark marks of fingerprints all over the house, on everything. All though most, if not all of them belong to us, it was still so scary. We had been violated.

One of the other issues that continue to bother me was that we had experienced a few earthquakes. I just knew we were going to die in a huge earthquake.

So as child I suffered from night terrors, I remember I would tell people these stories of what (I thought) had happened to me, I know that what I said probably sounded so crazy to others, but to me it seemed so real. I also talked and walked in my sleep, more so when I was in pain. Like after a hard work out or having my braces tightened, cramps etc. (I have some really funny stories about this – real ones)

I was an active young person. I Danced, Sang in the two school choirs, did Gymnastics and was on the Swim and Dive Teams in High School. I also performed at a Dinner Theater, but would find I was so worn out and in pain most of the time. Having issues with my cycle each month, suffering with cramps and headaches.

But for the most part I was happy growing up, I enjoyed swimming and the sun (maybe too much), roller staking at Roller Towne, family activities and trips, camping, and homemade ice cream. I have wonderful memories of Christmas, Holidays, Birthdays, and of Family Home Evenings etc.

On Christmas Eve of my senior year Donny asked me to marry him (crazy, I know). So a month after I graduated from High School, at the age of 18, I was sealed/ married to Donny in the Oakland Temple for time and all eternity, and like most young couples, having No Clue of what was in store for us.

#2 Fibromyalgia - Before “It” had a Name

As I continue sharing with you, looking back upon my life I can see how I have suffered with Fibromyalgia for most of my life. Let me explain the next part of my journey.
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By now I am married and a mother, we were living in California. I had Ashley when I was 20 years old, a good-sized baby at 8 lbs 3 oz, I had no problem nursing and she was a great sleeper. I bounced back pretty quick, fitting into most of my very tailored clothes. I was a swimmer and that really help me get back into shape.



Christi, with my sister Lisa, and Ashley - 1985

After having two miscarriages, I was seeking answers. I went to the Dr where he found that I had cysts on my ovaries, a condition my Mother suffered with, but with her, the outcome was having to have a full Hysterectomy at the age of 27.

So facing the possibility of not being able to have any more children, I remember Donny and I saying “at least we have Ashley”. When I went to schedule my surgery to remove the cysts I found out that I was pregnant. So here came Alissa, at the hefty weight of 9 lbs 4 oz, she was not very long, so we called her our “butterball”. She too nursed great, but seemed to sleep less than her sister did. Again getting back to my old self wasn’t too hard. Swimming once again was what helped me, plus I was in the sun getting a great tan at the same time.

After Alissa I suffered another miscarriage, (this one happened at Girls Camp) I was brought down from the mountains to the Dr. Because I have a negative RH (I have O- blood) I have to receive a RhoGam shot after the birth of any baby with a positive RH or after any miscarriage. I returned to Girls Camp a day later, I felt I needed to show the girls that I was all right and that this was apart of life.

Shortly after that experience I found that was expecting again. This time, like the others, I got huge and carried this baby to my exact due date. Kristen came to our family; weighting in at 9 lb s 5 oz she nursed great, but would never slept! We called her our “Night Owl”. I have to admit I did not like the way things were going. (Bigger babies and less sleep)

After Kristen was born, Donny and I started on a faith promoting, testimony-building project of building our own home. I mean we did 80% of the work ourselves. But during this time I also started to experience more symptoms of Fatigue, Pain, Sensitivity to the Sun/Light and to Sound I was also having skin problems. I went to the Dr again seeking help this time they thought I had Lupus. But when all my blood work came back normal, I was then told everything was in “my head” and that I needed more sleep.

This was very hard on me; I was in pain and suffering everyday. I went forward to the best of my ability. I must add at this point, that there had been many prayers on my behalf and many blessings given to me.

I had been told once that if I just had more “Faith” I would get better, I said it has NOTHING to do with not having enough Faith.

#3 Fibromyalgia - The Knowledge and The Struggle

I had two more babies in the course of the next few years, Katie and Sierra. Katie had numerous health problems (another story) and Sierra was born in West Virginia where we lived they for 2 ½ years (that is another whole story) We had moved back to California, I found a Dr who diagnosed me with full-blown Fibromyalgia. I was about six months a long with Shelby.

Finally after 6 years “It” had a name. A very real disease causing chronic pain, fatigue, and many other aliments, including the fact that I was getting sick so often. But because I was pregnant with Shelby, the Dr said “there is not much we can do for you right now”

I left Dr’s office upset and so discouraged. No one had ever heard of Fibromyalgia and so many people did not understand. I did not look “sick”.

Being the person I am I wanted to know all I could about this condition I was dealing with, but at that time they still did not know much about it or how to deal with it.

We moved shortly after Shelby was born to Alabama. The Lord blessed us with finding a house close to the chapel and close to great schools for the kids.

But I continued suffering, at this point it was the first time I had ever sought help from medication for the depression I was experiencing. It helped a little, but not as much as I had hoped. We lived Alabama for about a year and half, where for most of my time there I was sick and ended up having to have my tonsils taken out. I did not think I was going to survive.

Our next move took us to Ohio, but for only 7 months, again I was still so sick and I didn’t even have a Dr. there, I was feeling very alone. I was desperate; I tried so many different Herbs, Vitamins and Supplements, some so very expensive but full of empty results.

The next move brought us here to Provo, we moved in with Mark and Natalie Holden for a month. With our six girls and their five kids, we were a little cramped but it was fun. She told me of a Dr whose nurse had Fibromyalgia and that he had been attending extra meetings and classes to understand it better. But once again he could not do much for me I was pregnant again. This time we really were not prepared for that news. Not only was I pregnant, but I was pregnant with twin boys. I was in shock, I have never laughed and cried so hard in my life.


The pregnancy was hard on me I was put down to bed for almost 3 months. My Mother came and moved in with us to help take care of me, the house and my other 6 children. I ended up developing Preeclampsia (when your blood pressure goes so high that you can end up having a stroke, it can also affect the mother's kidneys, liver, and brain) I ended up having an emergency C-section 6 weeks early. One twin (Derek) was 6 lbs 3 oz and the other (Devin) only weighting 3 lbs 15 oz


I was so big and puffy.
Preeclampsia & Twins will do that to you!

Christi, Derek & Devin - Sep 1999













-

I really never did recovered after the twins were born. It was so traumatic on my body and brain. Life with twins was fun, exciting, hard, and overwhelming. I nursed them just about 5 months it was exhausting. It seemed that every time I got them attached all heck broke loose in the house.

Just over two and 1/2 years after the boys were born, I was really not feeling well, I went to the Dr with my blood pressure it was in the range of 168 over 124, if you don’t know what that means, I was in stage 3 hypertension and very close to having stroke. I was quickly put on medication for my blood pressure. I also went on Klonopin, this is an anti seizure medication that stopped me from walking and talking in my sleep for the first time in my life. I was also put on a medication for depression. Getting everything back in check was a process of trial and error until we could found out what would work for me.

After a few years, it was time to have Lindsay (that is another story unto its self) I went to the Dr and explained to him that I knew I had another little girl waiting to come to our family. (It’s great to have an LDS Dr) But that meant I needed to go off ALL my medications and needed to be monitored very closely. All seemed to be going well until once again, but very quickly this time I developed Preeclampsia. I had to have another c-section, this time a month early. Lindsay was healthy weighting in at 6 lbs 8oz. I nursed her for about 9 months. But I was still in so much pain, tired all the time and still sick so often. My blood pressure continued to be a problem.

#4 Fibromyalgia - The Dark Days and Day by Day

Because of my health issues and my blood pressure I had to go back on my medications. Again finding out what works for you takes some time and over time there had been changes here and there.

Since I had done pretty good on one of my meds before I had Lindsay my Dr put me back on that one, but I wasn’t feeling better this time. So he added a second medication for my depression. I felt great for the first time in a while; I thought we had found it, something that would really help me. But I as look back, I see I was slipping away as a person. The dose was so strong, I became unable to feel any emotion, happy or sad. I was just here and yet no where. I felt that I was spinning into darkness. My thoughts would speak to me so loudly. but yet I felt that no one was hearing me.


I doubted my worth, and yet I knew better. As months went by, my family grew more and more concerned for me. For some reason I felt I had hit the end. I remember that day very well; I was at church on that first Sunday in June last year (2007) I was sitting at the end of the bench with my head down, feeling nothing but that I was so lonely and lost. I got up, left and went home. Once home I walked around a little, I changed my clothes, then took a large handful of pills and went to my bed, I put a belt around my neck as tight as I could make it go and laid down.


I don’t think that I really wanted to end my life that day; 
I just wanted rest and to feel some peace. Donny had a feeling to come home, he found me with the belt around my neck and ripped it off. Very upset with me and scared, he called my Mom. I rested that evening, and then went to my Dr the next morning. They were seeing if I was going to hurt myself again. I stopped taking the two medications immediately. The problem was the two of them together. I was sent to a Psychologist and started therapy. I only had a few sessions, and was put on yet another medication. It was a slow recovery. The new medication added 25 pounds to my frame in just 3 months, adding more to my depression and also to my pain. So after 6 months I went off that one. I guess when it’s a choice between life or death, being fat is not a problem.




Mom & Christi
At Mom’s Ward Picnic - June 2007
(about two weeks after that very dark day)


So here I am back on the original medication I was on, taking things one day at a time. I still struggle with pain and fatigue and can still feel very alone. But I have also found things that help me. First - good healthy food, drinking lots of water and getting enough sleep (I have to take naps). Gentle exercise, sunlight and fresh air, Good music, Prayer, Knowing my limits and saying "No, I can’t do it this time." (It’s okay to say No) Priesthood blessings anytime I feel I need one. Laughter and good friends that love me. I also know that my Father Heaven loves me and knows me by my first name.

We are constantly beating ourselves up, STOP it!. So do not judge each other, we do not know, we do not always see the hurt and struggles they are going through. Let us be more aware, sensitive and kinder to each other. Lets us love unconditionally, serve one another and hug each other. You can only do your best and move on.


People like to ask me all the time “how are doing?” I’m not sure how to answer that question. Do they really want to know HOW I am doing? Most of the time I say, “I am here and I am hanging in” Each day brings different challenges, but it brings rewards too.

I am blessed to be alive, even if I suffer daily. I am blessed to have a wonderful husband and the gift of being a mother. It can be so totally frustrating and at the same time so amazing. I am blessed to have the gospel in my life, and I am grateful for the Atonement, that I need so often.

I have opened myself to you so that you might understand more. That this life is a journey and not a destination, and that we can and should help each other a long the way.


National Suicide Prevention Lifeline
Call 1-800-273-8255
Available 24 hours everyday




Wednesday, May 7, 2008

Fibromyalgia - Living with it Daily

I will be writing a four part series about the effect that Fibromyalgia has had on my life.

First to help all of you understand what it is:

About fibromyalgia

Fibromyalgia is a complex and multifaceted disease causing chronic pain. It involves both widespread myalgia (muscle pain) and localized pain in specific areas, particularly in the muscles around the joints. The musculoskeletal symptoms include pain, stiffness and tenderness. Pain commonly occurs in the neck, back, shoulders, pelvis and hands. The vast majority of the individuals affected are women.

Contrary to popular belief, it is a disorder of muscles, not of joints. Though pain is the main component of this condition, fibromyalgia also involves fatigue, sleep disturbances and mood disturbances, such as depression and anxiety. The condition is episodic, with flare-ups that vary in intensity and come and go over time

Signs and symptoms of fibromyalgia


Fibromyalgia is associated with a wide range of symptoms. Most studies report that these symptoms can be remarkably persistent and pervasive over the years, sometimes remaining as long as 15 years after onset.

Symptoms are typically worse during cold or damp weather, periods of emotional stress and at the beginning and end of the day. They may be aggravated by poor sleep, physical and mental fatigue, excessive physical activity or inactivity, anxiety or stress. Signs and symptoms include:



  • Multiple tender points (trigger points). The presence of multiple tender points, usually at muscle-tendon junctions, is a major characteristic of fibromyalgia. These points are more susceptible to pain than the rest of the body.

  • Chronic, widespread pain. Another major characteristic of fibromyalgia is tender skin and an overall reduction in pain threshold. The pain is most often within the muscles (myalgia). It may be confined to specific areas (e.g., neck, shoulders) early in the course of the disorder but usually spreads to other muscle groups over time (e.g., back, arms, legs, chest). This pain is often described as deep muscular aching, throbbing, twitching, stabbing and/or shooting pain. It may be accompanied by soreness, stiffness, numbness, tingling, burning and/or a crawling sensation. Though varying in intensity, some degree of muscle pain is always present. Pain behaviors such as limping, grimacing, or guarded movements and postures, may be easily noticeable and impair quality of life.


  • Muscle stiffness. This is usually present upon awakening and tends to improve over time, but may remain throughout the day. Often, the joints feel swollen, although inflammation is not present.


  • Fatigue. A general, all-encompassing exhaustion exists in the vast majority of fibromyalgia patients. Specific muscle fatigability and weakness is also increased. This fatigue tends to interfere with daily activities and may leave the individual with a limited ability to function, mentally and physically.
  • Sleep problems. Includes disorders that prevent deep, restful, restorative sleep. An individual may have difficulties falling asleep or may be awakened repeatedly during the night. Other individuals may get a full night’s sleep, but awaken feeling unrefreshed and exhausted. Specific sleep problems, including sleep apnea (repeated episodes where an individual temporarily stops breathing) and bursts of awake-like brain activity that interrupts deep sleep may be observed.


  • Headaches. More than half of all patients who have fibromyalgia report migraines and other headaches.
  • Impaired cognitive function (“fibro fog”). Includes memory failure, poor working memory (ability to hold something in mind while using it for another mental process) and impairments in concentration, coordination and vocabulary retention. Research indicates that these individuals perform as poorly as healthy individuals 20 to 30 years their senior, although they retain a speed of mental processing roughly equal to healthy individuals their age.


  • Hypersensitivity (increased sensitivity). Many fibromyalgia patients report heightened sensitivity to temperature, odors, sounds, lights and vibration. They also suffer from increased skin sensitivity.


  • Mood disturbances. Irritability, depression and anxiety are common symptoms of fibromyalgia. Depressed individuals may not be aware of or deny their depression, which can complicate the treatment of fibromyalgia. The presence of these symptoms may be due to many factors, including:
Prolonged pre-diagnosis period
Disrespectful medical treatment
Grief and loss common to any chronic illness
Poor support
Sleep deprivation
Other coexisting chronic health conditions
Severe chronic pain
Neurotransmitter abnormalities

  • Difficulty in sustaining repetitive motor tasks. Many fibromyalgia patients report trouble performing repetitive activities such as typing because of increased pain and fatigue.
  • Reduced physical efficiency. Decreased physical efficiency, due to a longer time required to accomplish tasks, is common.
  • Variations in alertness. Many fibromyalgia patients report a diurnal (daytime) variation in energy levels and alertness and describe a window of opportunity at which they are at their best that typically extends from about 10 a.m. to 2 p.m.
Other symptoms, including:
Dry eyes and mouth
Rashes
Excessive menstrual pain
Ringing in the ears (tinnitus) and ear pain
Painful intercourse
Dizziness
Vision problems
Low-grade fever
Below-normal temperature

For more great info

Fibromyalgia - The Phantom Pain Condition - http://www.energeticsinstitute.com.au/page/fibromyalgia.html